What is amyloidosis?
Medical research of amyloidosis is limited, there is currently no cure. Amyloidosis is a debilitating and fatal disease. Unhealthy proteins are deposited in the organs and tissues, creating irreversible damage. The walls of the heart and the tissues of the lungs are often attacked first.
Amyloidosis affects the body’s organs. Amyloidosis sufferers have trouble breathing, walking short distances, experience chest pain, and have all around poor health.
Because there is no cure, chemotherapy and stem cell transplant are often used to treat the disease. These leave permanent side effects such as drug dependency, nerve damage, and heart failure. For more information about amyloidosis visit one of the few medical centers studying amyloidosis in the United States: The Mayo Clinic.
The Research We Benefit
Who is amy? is dedicated to raising money for amyloidosis research. Contributing to research may lead to improved treatment and eventually a cure for amyloidosis and other blood related diseases and cancers. Who is amy? supports the Hematologic Malignancies Program at the Mayo Clinic because they are a leader in developing advanced treatments for hematologic malignancies.Hematologic Malignancies are cancers of the blood. This includes amyloidosis, lymphoma, multiple myeloma and certain types of leukemia. Members of the program include nationally and internationally recognized investigators, such as Dr. Morie Gertz. Dr. Morie Gertz works closely with amyloidosis patients and oncologists in Colorado. Currently, Dr. Gertz is “looking at new biomarkers, late complications of therapy, and results in patients who ultimately require renal replacement therapy”. He thanks Who is amy? and all of our supporters!
Other Important Research
- Research at Indiana University http://www.iupui.edu/~amyloid/
- Reseach at Boston University http://www.bu.edu/amyloid/